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Cerebral
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Booklist
Featured
Books
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Arnie and the New Kid. Nancy Carlson, $6.99 (4-8)
Able-bodied Arnie teases Philip — a new student at his school
who uses a wheelchair. However, after Arnie injures himself while making fun of
Philip, he begins to understand what it means to be compassionate and
welcoming. |
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Be Quiet, Marina! Kirsten DeBear & Laura
Dwight, $11.95
Marina has Cerebral Palsy and Moira has Down syndrome,
but they like many of the same things. However, Marina loves to make noise, and
Moira likes quiet. The story of their friendship is beautifully told in words
and photographs. |
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The Boy Who Could Run But Not Walk: Understanding
Neuroplasticity in the Child's Brain. Karen Pape, $34.00
This extraordinary book reveals the power of unconscious
assumptions in medicine and science. For example, a boy with cerebral palsy
affecting one side of his body had learned to walk badly with poor balance, but
he was also able to run and play in a competitive junior soccer league. Dr.
Pape explains that we walk and run with the same parts of the brain. This means
that if the run is normal, then the brain has recovered. The explanation is
simple. He learned to walk with a damaged, immature brain. He learned to play
soccer with a recovered, more mature brain. Doctors are trained to look at the
abnormal walk, not more competent, later learned skills. This book offers
readers a new understanding of how the baby brain grows and recovers
differently than an adult brain.
Throughout this remarkable book Dr. Pape shows that
cerebral palsy is not an incurable condition. The movement disorders are a
physical habit that can be changed, with a lot of hard work. The stories of
children’s recovery and improvements found within these pages are a
revelation — surprising, inspiring, and illuminating, offering real hope for some
of the world’s most vulnerable children. With profound implications for the
nearly 17 million children and adults worldwide living with cerebral palsy, The
Boy Who Could Run But Not Walk challenges the outdated thinking that there
is no cure for cerebral palsy. |
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Breakthrough
Parenting for Children with Special Needs: Raising the Bar of Expectations.
Judy Winter, $17.99
Breakthrough Parenting for Children
with Special Needs challenges families and professionals to
help children with special needs to reach their full potential by
using a proven motivational, how-to approach. This groundbreaking
and inspiring book provides detailed information on how to let go
of the “perfect-baby” dream, face and resolve grief, avoid the no-false-hope
syndrome, access early intervention services, and avoid the use
of limiting and outdated labels. Also included are specific guidelines
for working with professionals, understanding the law and inclusion
and planning for the future. |
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Can I Tell You about Cerebral Palsy? A Guide for
Friends, Family and Professionals. Marion Stanton, Illustrated by Katie
Stanton, $15.95
Meet Sophie — a girl with cerebral palsy (CP). Sophie
invites readers to learn about CP from her perspective, helping them to
understand what it is like to use a wheelchair to move around and assistive
technology to communicate. She also introduces readers to some of her friends
who have different forms of CP and explains that living with CP can sometimes
be difficult, but there are many ways she is supported so that she can lead a
full and happy life.
This illustrated book is ideal for young people aged 7
upwards, as well as parents, friends, teachers and professionals working with
children with CP. It is also an excellent starting point for family and
classroom discussions. |
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Cerebral Palsy: a Complete Guide for Caregiving, 3rd
Edition. Freeman Miller & Steven Bachrach, $45.95
When their child has cerebral palsy, parents need
answers. They seek up-to-date advice they can count on to make sure their child
has the best possible health and well-being. For three editions now, a team of
experts associated with the Cerebral Palsy Program at the Alfred I. duPont
Hospital for Children have shared vital information through this authoritative
resource for parents, who will turn to it time and time again as their child
grows.
The new edition is thoroughly revised to incorporate the
latest medical thinking, including advances in diagnosis, treatment, and
terminology. Every chapter includes new content on topics ranging from genetics
to pain, temperature control, palliative care, why growth suppression is
sometimes recommended, the Affordable Care Act, and how to make it easier for
siblings to cope. Chapter 8 has been entirely rewritten to better help
adolescents prepare for the transition to adulthood. New classification
systems, such as the gross motor function classification system and the
Functional Mobility System, are described and explained. And a number of
emerging therapies — including marijuana oil, cord blood transfusion, deep brain
stimulation, epilepsy surgery, and growing spinal rods — are explored.
Intended for parents, grandparents, teachers, therapists,
and others who care for and about people with cerebral palsy and cerebral
palsy-like conditions, this is an essential and compassionate guide.
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Children with Cerebral Palsy: a Manual for Therapists,
Parents and Community Workers. Hinchcliffe, Price & Rogers, $67.95
This book is a practical guide to the effective treatment of
cerebral palsy in children. It provides a set of principles by which to observe
and analyze individual patients' problems and then plan treatment. With the
help of this book, non-specialists working with children with cerebral palsy
can make decisions and choose the appropriate therapeutic activities for each
child. It includes examples of how to apply these principles to real-life
situations, using easy-to-follow descriptions and illustrations. New to this
revised edition is a chapter on sensory integration problems with children with
cerebral palsy, which looks at ways of evaluating and then dealing with these
problems. The author also integrates theory with practical skills more closely. |
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The Courage to Compete: Living with Cerebral Palsy and
Following My Dreams. Abbey Curran, $21.99
Abbey Curran was born with cerebral palsy, but early on
she resolved to never let it limit her. Abbey made history when she became the
first contestant with a disability to win a major beauty pageant. After earning
the title of Miss Iowa, she went on to compete in Miss USA.
Growing up on a hog farm in Illinois, Abbey competed in
local pageants despite naysayers who told her not to. After realizing her own
dream, she went on to help other disabled girls achieve their goals by starting
Miss You Can Do It, a national non-profit pageant for girls and women with
special needs and challenges, which became the subject of an HBO documentary
with the same name. This is Abbey’s story. |
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Finnie’s
Handling the Young Child with Cerebral Palsy at Home, 4th Edition.
Edited by Eva Bower, $78.95
The 4th edition of Finnie s Handling the Young Child with Cerebral Palsy at Home aims to help parents assist their child with cerebral palsy (CP) towards achieving the most comfortable independence in all activities. The book is also intended to help professionals and other carers new to this field understand, support and encourage young children with CP and their families.
The emphasis of this new edition remains a holistic approach to the child's needs - seeing the difficulties in relation to the overall development of the child as a unique person from childhood to adulthood. |
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The Four Walls of My Freedom. Donna Thomson, $19.95
This is a riveting and redemptive family
memoir. Donna Thomson's vivid descriptions of her own experience in treading
delicately through daily care, medical emergencies and the medical bureaucracy
as she and her family cope with her son Nicholas' cerebral palsy is both
inspirational and instructive.
Donna Thomson's own experience with adversity takes on new meaning when viewed
through the lens of Nobel Prize-winning economist Amartya Sen and other
philosophers' roadmaps of how to realize a good life against all odds. This
lens includes not only people with disability, but also the enormous generation
of post-WWII Baby Boomers who are beginning to sense the health care crisis
that is looming as they deal with their own aging and increasingly infirm
parents.
Donna Thomson's brilliantly written family memoir provides a strong, original
message that touches on the lives of anyone caring for the needs of another. |
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If at Birth You Don't Succeed: My Adventures with
Disaster and Destiny. Zach Anner, $31.50
Comedian Zach Anner opens his frank and devilishly funny
book, If at Birth You Don't Succeed, with an admission: he botched
his own birth. Two months early, underweight and under-prepared for life, he
entered the world with cerebral palsy and an uncertain future. So how did this
hairless mole-rat of a boy blossom into a viral internet sensation who's hosted
two travel shows, impressed Oprah, driven the Mars Rover, and inspired a John
Mayer song? (It wasn't "Your Body is a Wonderland.")
If at Birth You Don't Succeed is a hilariously irreverent and
heartfelt memoir about finding your passion and your path even when it's paved
with epic misadventure. This is the unlikely but not unlucky story of a man who
couldn't safely open a bag of Skittles, but still became a fitness guru with
fans around the world. You'll laugh, you'll cry, you'll fall in love with the
Olive Garden all over again, and learn why cerebral palsy is, definitively,
"the sexiest of the palsies." |
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Life Skills Activities for Secondary Students with
Special Needs, 2nd Edition. Darlene Mannix, $39.95
Ready-to-use lessons for teaching basic life skills to
adolescents with special needs. This book offers teachers and parents a unique
collection of more than 200 worksheets to help adolescents with special needs
build the life skills they need to achieve independence and succeed in everyday
life. The book provides 22 complete teaching units focusing on basic life
skills such as handling money, succeeding at school, using the Internet safely,
getting and keeping a job, and much more. The book contains 90 reproducible
worksheets for teaching students how to apply these life skills to real-life situations. |
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Life Skills Activities for Special Children Grades K-5,
2nd Edition. Darlene Mannix, $39.95
This book offers teachers and parents a unique collection of
190 ready-to-use activities complete with student worksheets, discussion
questions, and evaluation suggestions to help exceptional students acquire the
basic skills needed to achieve independence and success in everyday life. Each
of the book's activities focuses on specific skills within the context of
real-life situations and includes complete teacher instructions for effective
use, from objective and introduction through optional extension activities and
methods to assess student learning. The book includes numerous reproducible
parent letters which can be sent home to help parents reinforce these lessons
while children are away from school. |
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Mitchell’s Story: Living with
Cerebral Palsy. Jeff Parkin & Lynda Thompson,
$20.50
This is the story of one family’s
struggle to give their son as normal a life as possible — and the rewards they
found along the way. |
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MyaGrace Wants to Get Ready: a True Story Promoting
Inclusion and Self-Determination. Jo Meserve Mach, Vera Lynne
Stroup-Rentier & Mary Birdsell, $12.95 (ages 3-8)
MyaGrace loves music and dancing. Her school is having a
big dance and she wants to go with her friend, Emily. She has so much to do to
get ready. What should she wear? How should she fix her hair? What color should
she paint her fingernails? Will she get everything done in time?
MyaGrace Wants to Make Music: a True Story Promoting
Inclusion and Self-Determination. Jo Meserve Mach, Vera Lynne
Stroup-Rentier & Mary Birdsell, $12.95 (ages 3-8)
Everyone in MyaGrace’s family makes music. She wants to
join her family when they make music. How is she going to figure this out?
Fortunately, MyaGrace knows just the person to help.
The Growing With Grace Series promotes the understanding
that children with all types of abilities can gain skills they need for
self-determination. MyaGrace has intellectual disabilities, autism and cerebral
palsy. |
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OE Wants It to Be Friday: a True Story Promoting
Inclusion and Self-Determination. Jo Meserve Mach, Vera Lynne
Stroup-Rentier & Mary Birdsell, $12.95 (ages 3-8)
OE is counting down the days until Friday. It’s her
favorite day of the week. Each day she has fun, but she knows she will have
fabulous fun on Friday. She can’t wait for her special time with Dad and her
Boccia coach, Austin. |
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Out of My Mind. Sharon Draper, $12.99
Eleven-year-old Melody has a photographic memory. Her head is like a video camera that is always recording. Always. And there's no delete button. She's the smartest kid in her whole school — but no one knows it. Most people — her teachers and doctors included — don't think she's capable of learning, and up until recently her school days consisted of listening to the same preschool-level alphabet lessons again and again and again. If only she could speak up, if only she could tell people what she thinks and knows...but she can't, because Melody can't talk. She can't walk. She can't write.
Being stuck inside her head is making Melody go out of her mind — that is, until she discovers something that will allow her to speak for the first time ever. At last Melody has a voice... but not everyone around her is ready to hear it. |
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Supporting Children with Cerebral Palsy, 2nd Edition. Rob
Grayson, et al, $47.50
Offering practical tips and tried-and-tested strategies
from professional practitioners, this accessible guide provides advice on how
to meet the needs of young people with cerebral palsy. This new edition
presents all of the information practitioners will need to know to deliver
outstanding provision for young people with cerebral palsy and support the
inclusion of children and young people with cerebral palsy into mainstream
schools. The far-reaching advice found within this guide includes:
- Planning for a pupil with cerebral palsy
- Accessing the curriculum, including specific advice on each
subject area
- Developing independence skills
- Liaising between home and school
- Making the transition into adulthood
With accessible materials, such as checklists, templates
and photocopiable resources, this up-to-date guide will enable teachers and other
professionals to feel more confident and effective in the support they can
provide. |
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The Survival Guide for Kids with Physical Disabilities
& Challenges. Wendy Moss & Susan Taddonio, $21.99
For many kids with physical disabilities and challenges,
the barriers they face go beyond what they can and can’t do with their bodies.
Loaded with tools for coping with the intense social, emotional, and academic
difficulties these students often must deal with — as well as their secret
fears — this book helps kids succeed in and out of the classroom and confidently
handle their physical challenges. Friendly illustrations, think-about-it
prompts, true-to-life stories gathered from the authors’ decades of experience,
and specific tips and advice provide comfort, hope, and supportive guidance. |
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Taking Cerebral Palsy
To School. Mary Elizabeth Anderson, $17.95
School friends learn about cerebral palsy. Ages 5-9. |
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Teaching Motor
Skills to Children with Cerebral Palsy and Similar Movement Disorders:
a Guide for Parents and Professionals. Sieglinde Martin,
$30.50
Written by an experienced physical therapist who is also the mother
of a child with cerebral palsy, this comprehensive guide examines
the physical characteristics of cerebral palsy and similar conditions
- muscle tightness and weakness, increased or decreased flexibility,
abnormal reflexes, impaired sensory perception - that affect a child's
ability to sit, crawl, stand, and walk. Teaching Motor Skills offers dozen of easy-to-follow exercises with accompanying photos
that parents may incorporate into many daily routines at home with
the guidance and support of their child's physical therapist. This
user-friendly guide helps parents and professionals coordinate their
efforts to achieve the best possible outcome for the child.
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Understanding Cerebral Palsy: a Guide for Parents
and Professionals. Marion Stanton, $25.95
An invaluable starting point for anyone
encountering cerebral palsy for the first time, this book provides essential
background information on causes, types and symptoms, as well as vital advice
about the treatments, therapies and sources of support available. Practical
tips on everyday considerations such as communication, diet and education will
help parents achieve the best quality of life for their child. A final chapter
explores options after compulsory education and how best to support a young
person making the transition to independent adulthood.
Using personal experience and case
studies as sources of inspiration, as well as a comprehensive list of resources
to signpost readers to further information, this positive handbook will help
parents and professionals more fully understand cerebral palsy and the
different options available to people with the condition. |
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Views from Our Shoes: Growing Up with a Brother or Sister
with Special Needs. Donald Meyer, $21.50
The boys and girls whose essays are featured in this
collection range in age from four to eighteen. They share their experiences as
the sibling of someone with a disability — the good and bad aspects, as well as
many thoughtful observations. They are siblings of people with a variety of
special needs, including autism, cerebral palsy, developmental delays, chronic
health conditions, attention deficit disorder, hydrocephalus, visual and
hearing impairments, Down syndrome, and Tourette syndrome. These personal tales
introduce siblings to others like them, perhaps for the first time, and allow
them to compare experiences. |
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Visual Strategies for Improving Communication: Practical
Supports for School and Home, 2nd Edition. Linda Hodgdon, $60.95
This revised and updated edition of this bestseller is the
most comprehensive book to explain the use of visual strategies to improve
communication for students who experience moderate to severe communication
challenges. It is full of easy-to-use techniques and strategies that will help
these students participate more effectively in social interactions and life
routines. |
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Yago’s Heartbeat. Conchita Miranda, illustrated by Monica Carretero, $23.50
Can you dance in a wheelchair? Can you sing without being able to speak? Can you tell stories just with your eyes?
Yago’s Heartbeat is a story for everyone about differences, communication without words and unconditional love. |
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Yoga Therapy for Every
Special Child: Meeting Needs in a Natural Setting. Nancy Williams,
Illustrated by Leslie White, $22.95
Yoga therapy is gaining rapid recognition as a form of treatment that can improve the physical and mental wellbeing of children with a variety of complex needs. This book contains a specially-designed yoga program for use with children of all abilities, and provides both parents and professionals with the knowledge they need to carry out the therapy themselves.
The program consists of a series of postures, each of which is explained and accompanied by an illustration. The postures are designed to help children understand and use their bodies, and work towards positive changes such as realigning the spine, encouraging eye-contact, and promoting calm and steady breathing. Consideration is given to creating the right setting for carrying out the therapy, assessing an individual child's particular needs, and making the sessions fun using games and props. Sections on yoga therapy for specific conditions such as autistic spectrum disorder, Down syndrome, and cerebral palsy are included, and the book concludes with child and parent reports on how the program has worked for them, and a list of useful contacts and resources.
This practical book is a must for parents, teachers, therapists and other professionals, and anybody else who wants to help a child to develop through enjoyable and therapeutic yoga sessions. |
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Complete
Booklist
Resources
for Families & Professionals
The Boy Who Could Run But Not Walk: Understanding
Neuroplasticity in the Child's Brain. Karen Pape, $34.00
Breakthrough Parenting for Children with Special Needs:
Raising the Bar of Expectations. Judy Winter, $17.99
Cerebral Palsy: a Complete Guide for Caregiving, 3rd
Edition. Freeman Miller & Steven Bachrach, $45.95
Children with Cerebral Palsy: a Manual for Therapists,
Parents and Community Workers. Hinchcliffe, Price & Rogers, $67.95
The Courage to Compete: Living with Cerebral Palsy and
Following My Dreams. Abbey Curran, $21.99
Finnie’s Handling the Young Child with Cerebral Palsy at
Home, 4th Edition. Edited by Eva Bower, $78.95
The Four Walls of My Freedom. Donna Thomson, $19.95
If at Birth You Don't Succeed: My Adventures with Disaster
and Destiny. Zach Anner, $31.50
Life Skills Activities for Secondary Students with Special
Needs, 2nd Edition. Darlene Mannix, $39.95
Life Skills Activities for Special Children Grades K-5, 2nd
Edition. Darlene Mannix, $39.95
Mitchell’s Story: Living with Cerebral Palsy. Jeff Parkin
& Lynda Thompson, $20.50
Supporting Children with Cerebral Palsy, 2nd Edition. Rob
Grayson, et al, $47.50
Teaching Motor Skills to Children with Cerebral Palsy and
Similar Movement Disorders: a Guide for Parents and Professionals. Sieglinde
Martin, $30.50
Understanding Cerebral Palsy: a Guide for Parents and
Professionals. Marion Stanton, $25.95
Visual Strategies for Improving Communication: Practical
Supports for School and Home, 2nd Edition. Linda Hodgdon, $60.95
Yoga Therapy for Every Special Child: Meeting Needs in a
Natural Setting. Nancy Williams, Illustrated by Leslie White, $22.95
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Books for
Kids & Teens
Arnie and the New Kid. Nancy Carlson, $6.99 (4-8)
Be Quiet, Marina! Kirsten DeBear & Laura Dwight, $11.95
Can I Tell You about Cerebral Palsy? A Guide for Friends,
Family and Professionals. Marion Stanton, Illustrated by Katie Stanton,
$15.95
Mama Zooms. Jane Cowen Fletcher, $6.99 (3-5)
MyaGrace Wants to Get Ready: a True Story Promoting
Inclusion and Self-Determination. Jo Meserve Mach, Vera Lynne Stroup-Rentier
& Mary Birdsell, $12.95 (ages 3-8)
MyaGrace Wants to Make Music: a True Story Promoting
Inclusion and Self-Determination. Jo Meserve Mach, Vera Lynne Stroup-Rentier
& Mary Birdsell, $12.95 (ages 3-8)
OE Wants It to Be Friday: a True Story Promoting Inclusion
and Self-Determination. Jo Meserve Mach, Vera Lynne Stroup-Rentier & Mary
Birdsell, $12.95 (ages 3-8)
Out of My Mind. Sharon Draper, $12.99 (11-16)
The Survival Guide for Kids with Physical Disabilities &
Challenges. Wendy Moss & Susan Taddonio, $21.99
Taking Cerebral Palsy to School. Mary Elizabeth Anderson,
$17.95 (5-9)
Views from Our Shoes: Growing Up with a Brother or Sister
with Special Needs. Donald Meyer, $21.50
Yago’s Heartbeat. Conchita Miranda, illustrated by Monica
Carretero, $23.50
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