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Physical Challenges & Chronic Illnesses

Featured Books in this Category / Main Booklist

Featured Books


The Beauty of Love: a Memoir of Miracles, Hope and Healing. Laura Posada & Jorge Posada, $27.99

Jorge and Laura Posada were accustomed to being on top of the world. But all of that changed when their first-born was diagnosed with craniosynostosis, a birth defect that causes an abnormally shaped skull. Their priorities swiftly changed, as Jorge and Laura navigated their way through the challenges of their son's diagnosis and eventual treatment, which has included eight major surgeries. Laura stayed home with her son, while Jorge suffered in silence as he tried to stay strong under the pressure to perform as a Yankees baseball player.

Amid their fear, confusion, and anxiety as young parents, they decided to keep their son's sickness a secret to protect him from a media frenzy, but in time they realized it was this very celebrity status that would allow them to make a difference. They decided to open the Jorge Posada Foundation to help kids with the same condition, a decision that gave new meaning to their lives.

THE BEAUTY OF LOVE is more than a memoir about dealing with childhood illness — it is a heartfelt and uplifting illustration of how a couple can endure stress and strife and come out stronger on the other side.


Blue Skies for Lupe. Linda Kurtz Kingsley, $23.95

Blue Skies for Lupe will warm readers' hearts with its simple, but gripping story based on the real-life adventures of a Mexican immigrant born with physical disabilities. Linda Kurtz Kingsley's charming tale is supported by her beautiful watercolors, sensitively rendered to capture the landscapes and people in Lupe's life.

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Can I Tell You about ME/Chronic Fatigue Syndrome? A Guide for Friends, Family and Professionals. Jacqueline Rayner, Illustrated by Jason Lythgoe-Hay, $15.95

Meet Mollie — a woman with an illness called ME (Myalgic Encephalomyelitis) or CFS (Chronic Fatigue Syndrome), and her family, Mike, Ellie and Eric. Mollie and her family help readers to understand what ME/CFS is, what it is like to have it and how it can affect their family life. Mollie can't always do things that other mums do because of her illness, which can sometimes be frustrating, but they share strategies that help them all to cope. The family also explain how ME/CFS can affect different people in different ways.

This illustrated book is an ideal introduction to this often misunderstood condition. It shows family, friends and anyone who knows someone with the condition how they can support someone with ME/CFS, and their family.


Believe in My Child with Special Needs! Helping Children Achieve their Potential in School. Mary Falvey, $21.95

Every parent is filled with dreams, fears, hopes, and questions when preparing a child for school — and when that child has a disability, this exciting time can seem overwhelming. This upbeat, reassuring handbook is an invaluable resource to share with parents of a school-age child with a disability. It demystifies complicated issues, encourages parents to celebrate abilities and recognize possibilities, and tells parents everything they need to know to be successful advocates throughout their child's education.

Best Friend on Wheels. Debra Shirley, illustrated by Judy Stead, $18.99 (gr. K-3)

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Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations. Judy Winter, $17.99

Breakthrough Parenting for Children with Special Needs challenges families and professionals to help children with special needs to reach their full potential by using a proven motivational, how-to approach. This groundbreaking and inspiring book provides detailed information on how to let go of the “perfect-baby” dream, face and resolve grief, avoid the no-false-hope syndrome, access early intervention services, and avoid the use of limiting and outdated labels. Also included are specific guidelines for working with professionals, understanding the law and inclusion and planning for the future.


Children with Disabilities, 7th Edition. Mark Batshaw, Nancy Roizen & Gaetano Lotrecchiano, $114.50

This highly anticipated new edition is the textbook of choice for courses on disability. The internationally respected editors bring together a who's who of contributors in this definitive compendium of information about developmental, clinical, family, education, and intervention issues. WHAT'S NEW:

  • All-new chapters on diagnosis, neuropsychological assessment, "new" disabilities faced by survivors of previously fatal disorders, and complementary and alternative medicine
  • New multimedia instructor materials online, including high-quality downloadable medical illustrations
  • Expanded chapters on autism and ADHD
  • New developments in neuroscience, genetics, and imaging
  • Greater focus on interdisciplinary collaboration
  • Thoroughly updated content in every chapter
  • PowerPoint slides for each chapter, easy to customize for courses

CHILDREN WITH DISABILITIES retains and strengthens the student-friendly features of previous editions: concise and accessible chapters, a helpful glossary, chapter overviews, case studies that bring key concepts to life, extensive cross-referencing to make information easy to find, and resource lists for every topic. And with the complete package of new multimedia instructor materials, instructors will use this textbook effectively in their courses and prepare students for years of successful practice. An unparalleled text from the leading voices in the disability field, CHILDREN WITH DISABILITIES is the cornerstone resource future professionals will keep year after year supporting their important work with children and families.


College Success for Students with Physical Disabilities. Chris Wise Tiedemann, $21.95

COLLEGE SUCCESS FOR STUDENTS WITH PHYSICAL DISABILITIES is a college planning guide for students with physical disabilities and chronic medical conditions. Students will learn about their rights under the laws governing education and disability, self-advocacy, choosing a college, how having a physical disability affects admissions testing, the increased responsibilities in college, and how to make sure they get everything they need. The book contains forms, checklists, interviews with other students, advice from college disability services personnel, and profiles of disability-friendly colleges across the United States.

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Dancing with Katya. Dori Chaconas, illustrated by Constance R. Bergum, $21.95

Anna loves to dance with her beloved sister Katya in the meadow of their family's Wisconsin farm. But during the summer in which Katya turns five she is suddenly overcome by a high fever. The doctor delivers a grim diagnosis: polio. Although she recovers from the lingering illness, Katya's legs are left weakened and twisted. Anna carries her to the meadow in a wheelbarrow now, and dances alone for her sister. Together they dream of a time when Katya will be able to join her in their ballerina game.


Disorders of Sex Development: a Guide for Parents and Physicians. Amy Wisniewski, Steven Chernausek & Bradley Kropp, $20.50

Compassionately written by an experienced team of professionals, this book offers parents and families essential information about the causes, diagnosis, and treatment of disorders of sex development, or DSD. DSD refers to medical conditions, usually discovered at birth, in which there is disagreement between a person's genetic sex (i.e., chromosomes) and the appearance of the person's external or internal reproductive structures.

After their child is diagnosed with DSD, parents need answers to a host of questions. This concise book answers parents' questions in a reassuring and forthright way, giving affected individuals, their families, and their health care providers a current and evidence-based picture of DSD. It offers clear explanations of how newborns with DSD are evaluated, diagnosed, and treated; describes the different kinds of DSD; and pays close attention to both psychosocial and medical aspects of DSD. This guide also includes information about the importance of support groups and education for affected individuals and their families. DISORDERS OF SEX DEVELOPMENT gives the information they need to reach a meaningful understanding of their child's DSD and make informed decisions about their child's health.


A Guide to Living with Ehlers-Danlos Syndrome (Hypermobility Type): Bending without Breaking, 2nd Edition. Isobel Knight, $23.95

Covering everything from recognising symptoms and obtaining initial diagnosis to living with the condition on a daily basis, this complete guide to living with and managing Ehlers-Danlos Syndrome (Hypermobility Type — formerly known as Type III) has been revised and fully-updated in this accessible new edition. The author, who has the condition, looks at how it affects children and adolescents and explores pain management, pregnancy, physical and psychological aspects, and how it widely affects dancers and other performance artists.

New material includes: • changes in terminology • information on how osteopathy and nutrition can help • psychological approaches beyond CBT • how to deal with professionals  • what to expect from support groups and rehabilitation programmes

This new edition will be a must for anybody who suffers, or suspects they might be suffering from, Ehlers-Danlos Syndrome (Hypermobility Type) and provides everything needed to enjoy a fulfilling life with this complex condition. It will also be of interest to their families and friends, and professionals working with Hypermobility Type EDS.

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Heart Warriors: a Family Faces Congenital Heart Disease. Amanda Rose Adams, $18.50

Five months pregnant, Amanda Adams was told her baby was missing half his heart and given two abysmal choices regarding her pregnancy: force her baby to fight for his life, or perform a late term abortion. Despite the fact that Liam's odds of death were high and his odds of suffering were absolute, Amanda chose life. She found herself redefining the usual expectations a mother has for her child. Instead of wondering where he'd go to college, she was asking, "Will he even survive past his first birthday?" That question hung heavily on Amanda's soul, which she termed "anticipatory grief." The anger and eventual acceptance of her grief helped her accept her new role as a powerful advocate.

At eight years old, Liam's small chest is lined with scars, yet they tell a story of a boy who is mature beyond his years and is aware of his tentative, yet promising, future.


Helping Children and Adolescents with Chronic and Serious Medical Conditions: a Strengths-Based Approach. Nancy Boyd Webb (Editor), $69.50

Providing an innovative inter-professional model, Helping Children and Adolescents with Chronic and Serious Medical Conditions provides a multi-disciplinary approach so that practitioners from a diverse range of helping fields, working in hospitals, out-patient clinics, agencies and schools, may be better equipped to foster children's resilience and build on their emotional strengths. This is a vital tool for a broad range of health care professionals, including social workers, school counselors, play therapists, nurses, and many others.


How Come You Walk Funny? Tina Hahn, James Weyman, et al. Symmetree Media. DVD format, 79 minutes. $49.99

Finding a good school is tough, but finding a school that works for the Bowen twins is an even bigger challenge: Douglas is an able-bodied, bouncy 4-year old while brother Mark has cerebral palsy from oxygen deprivation when he was born. Their mother has worked hard to include Mark in all aspects of family life, but what happens when it's time for the boys to go to school and meet the real world?

The answer lies tucked away behind a quiet, well-kept neighborhood in North Toronto at the Bloorview MacMillan Centre School. Hailed by some parents as the utopia of kindergartens, the school's Integrated Kindergarten Program (IKP) is perhaps the only place in the world where committed parents and dedicated teachers deliver a bold childhood education program that marries academic exploration and self-discovery in a "reverse integration" setting that asks able-bodied kids to meet kids with physical challenges on their turf.

Enter a world where walkers and mobility equipment compete for space with scooters and trikes in the halls, where computer voices from communication devices mix with excited children's chatter. This is a place of laughter where achievement triumphs over differences — a world where anything is possible.

Watch a rambunctious class of 4 to 6 year-olds discover the common ground that unites them as they learn to milk a cow, parade in a dragon dance, find their perfect Valentine's match and dig for dinosaur bones in the Alberta Badlands. And witness the challenges and inspiration their parents discover as they try to extend inclusion beyond the classroom.

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Imagine a Rainbow: a Child's Guide for Soothing Pain. Brenda Miles, Illustrated by Nicole Wong, $14.50

When a child is in pain, imagining scenes that are soothing or uplifting may help reduce the discomfort. IMAGINE A RAINBOW is a beautiful tool for introducing children to the idea of using their imaginations to cope with pain, whether by itself or as part of a more comprehensive pain management plan.

The book also includes an extensive Note to Parents that explains the techniques of imagery and deep breathing, and how to help children use them.


Immortal Bird: a Family Memoir. Doron Weber, $18.99

A family’s love lies at the heart of this gifted boy’s fight to survive. Born with a congenital heart defect that required surgery when he was a baby, Damon Weber lives a big life with spirit and independence that have always been a source of pride to his parents, Doron and Shealagh. But when Damon is diagnosed with a new illness as a teenager, his triumphant coming-of-age tale turns into a darker and more dramatic quest: his family’s race against time and a flawed heath care system.

IMMORTAL BIRD is a searing account of a father’s struggle to save his remarkable son, a story of a young boy’s passion for life, and a tribute to his family’s love. It is also a story of the perils of modern medicine and the redemptive power of art in the face of the unthinkable.


It’s OK to Be Me! Just Like You I Can Do Almost Anything! Jennifer Moore-Mallinos, $8.50

From a child’s point of view, life can often seem difficult, but this brightly illustrated book encourages children never to be afraid of a challenge. It’s all right to be a little scared about things that seem hard to do, but whatever the challenge, determination and practice can get them through. The child in this story must stay in a wheelchair. Sometimes, he feels bad because he is left out of things by his classmates. One day, watching his friends play basketball, he has an idea. He decides that even while remaining in his wheelchair, he too can learn to play the game.

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Just One of the Kids: Raising a Resilient Family When One of Your Children Has a Physical Disability. Kay Harris Kriegsman & Sara Palmer, $25.95

If you have a child with a physical disability, how can you plan your family’s life in a way that is inclusive for everyone? What can you do to create a family where every member pulls his or her own weight (in appropriate measure), meets challenges, and has moments in the spotlight along the way? Most parents of a child who has a physical disability want their child to have fun, be responsible, make friends, and take acceptable risks — in short, to feel like "just one of the kids" — and they want to make sure that the needs of the whole family are met, too.

Just One of the Kids is designed to help parents focus not on what could have been but instead on what can be, so that they, their children, and the grandparents thrive as individuals and as a family. The advice from psychologists Kay Harris Kriegsman and Sara Palmer is valuable for any family with children who have a physical disability, from any cause. Their warm and encouraging book is full of family stories, tips, and tools. Parents of children with physical disabilities can help them develop the skills needed to meet life’s challenges and launch into independence. Parents, building on that foundation and acknowledging each person’s contributions, interests, and aspirations, create an inclusive and resilient family.


Laughing at My Nightmare. Shane Burcaw, $13.99

With acerbic wit and a hilarious voice, Shane Burcaw describes the challenges he faces as a twenty-one-year-old with spinal muscular atrophy. From awkward handshakes to having a girlfriend everything in between, Shane handles his situation with humor and a "you-only-live-once" perspective on life. While he does talk about everyday issues that are relatable to teens, he also offers an eye-opening perspective on what it is like to have a life-threatening disease.


Life Disrupted: Getting Real about Chronic Illness in Your Twenties and Thirties. Laurie Edwards, $16.95

LIFE DISRUPTED is a personal and unflinching guide to living well with a chronic illness: managing your own health care without letting it take over your life, dealing with difficult doctors and frequent hospitalizations, having a productive and satisfying career that accommodates your health needs, and nurturing friendships and a loving, committed relationship regardless of recurring health problems.

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Living Well with Mitochondrial Disease: a Handbook for Patients, Parents and Families.Cristy Balcells, $32.95

LIVING WELL WITH MITOCHONDRIAL DISEASE helps make sense of an overwhelming and complex group of diagnoses. This guide is the first book about Mito written for patients and their families. It helps readers understand how the mitochondria work (they are the powerhouse of the cell, providing energy for the entire body), how people with mitochondrial defects are diagnosed and treated, and how to live well when you, your child, or someone you love is struggling with disabling symptoms.

Writing as a parent and nurse, the author shows adult patients, parents, family members, and caregivers how to achieve the best quality of life possible. Readers will feel empowered as they come to understand Mito, learn to manage the symptoms, avoid emergencies, and make appropriate lifestyle choices. Topics include:

  • the journey to diagnosis
  • the biochemistry of Mito
  • practical advice for the specific needs of children and adults
  • understanding and managing symptoms
  • where to find specialists and support
  • treatment approaches
  • autism and Mito

Managing Your Child's Chronic Pain. Tonya Palermo & Emily Law, $24.95

Studies suggest that as many as four out of ten children and adolescents suffer from chronic pain. The causes of chronic pain in young people vary, from illness-related causes to pain following medical procedures. In fact, in some children the cause of chronic pain is never explained.

Managing Your Child's Chronic Pain is an invaluable resource for parents who wish to learn how to help their children and families cope with persisting pain using cutting-edge, scientifically proven treatment tools and techniques. The easy-to-implement strategies in this book provide parents with practical instructions for pain management that will enable children to return to school, participate in sports and other activities, and pursue healthy and active social lives. With guidance on how to prevent relapse, maintain improvements, and prevent future problems with pain and disability, Managing Your Child's Chronic Pain will empower parents to take a hands-on approach to relieving their child's pain.

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Marco and I Want to Play Ball: a True Story Promoting Inclusion and Self-Determination. Jo Meserve Mach, Vera Lynne Stroup-Rentier & Mary Birdsell, $12.95 (ages 3-8)

Isiah has Spina Bifida. He and his cousin Marco share a love of baseball. Who’s going to hit the ball farther? Who’s going to hit the ball higher? Whose ball will hit the barn?  Cousins like to tease and play, when Grandpa is pitching.


My Grampy Can't Walk. Vanita Oelschlager, illustrated by Robin Hegan & Kristin Blackwood, $10.95 (about multiple sclerosis)

Grampy can't walk anymore because he has multiple sclerosis. But that doesn't slow him down — or his grandchildren. Together they go places, do things and learn about life as only grandparents and grandchildren can.


My Heart vs. the Real World: Children with Heart Disease, In Photographs & Interviews. Max Gerber, $31.95

MY HEART VS. THE REAL WORLD is an extraordinary photo essay that explores the lives of children with congenital heart disease through striking photographs and interviews with subjects and their families. These are stories of how CHD patients and their families cope with and overcome extraordinary obstacles — and learn about themselves during the process. MY HEART VS. THE REAL WORLD is sometimes funny, sometimes sad, always thought–provoking, and altogether human.

Author Max Gerber is a professional photographer who was born three months premature with bradycardia (an abnormally low heart rate). He has had a pacemaker since the age of eight.


The Pocket Occupational Therapist for Families of Children with Special Needs. Cara Koscinski, $25.95

If you are unsure about what occupational therapy (OT) is and how it can help your child, this accessible overview is for you. Answering all of the common questions about the issues an occupational therapist might address with a child with special needs, including core muscle strength, feeding, fine motor skills, sensory sensitivities, transitions and life-skills, this book also offers simple activities to practice at home that are inexpensive, fun and, most-importantly, OT-approved.

This will be an illuminating and essential guide for parents and carers of children with physical and developmental disabilities or parents of children in rehabilitation from illness or injury. Professionals who want to learn more about the principles and practicalities of occupational therapy will also find it useful.

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POTS and Other Acquired Dysautonomia in Children and Adolescents: Diagnosis, Interventions, and Multi-Disciplinary Management. Kelly McCracken Barnhill, $27.95

This is an authoritative overview for anyone encountering Postural Orthostatic Tachycardia Syndrome (POTS) — a dysfunction of the autonomic nervous system resulting in diverse symptoms experienced in an upright position that are relieved by lying down — and other types of acquired dysautonomia. It provides essential information on the symptoms, diagnosis and treatment in children and young people.

Post-viral syndromes can be extremely difficult to manage and the average individual spends two to three years accessing appropriate diagnosis. This book provides necessary information for parents and healthcare professionals on identifying POTS and other post-viral dysautonomia, the most common triggers, appropriate intervention and successful multi-disciplinary management in both short and long term situations. It also includes helpful tips and coping strategies for managing the syndrome at home and in educational and clinical settings.

Providing clear information on the causes, symptoms and diagnosis of POTS and other acquired dysautonomia, this practical handbook allows parents and professionals to gain a fuller understanding of post-viral syndromes. It covers a range of interventions and includes strategies for management and treatment at home and in clinical settings.


Raising a Child with Arthritis: from Infancy to Young Adulthood. Charlotte Huff, $16.50

RAISING A CHILD WITH ARTHRITIS provides solutions for the daily challenges in your child’s life.


Reese Has a Halloween Secret: a True Story Promoting Inclusion and Self-Determination. Jo Meserve Mach, Vera Lynne Stroup-Rentier & Mary Birdsell, $13.50

Reese uses a wheelchair and a walker, and for Halloween his father has made him a costume that includes Reese's wheelchair. Reese loves having a secret, so no one knows what he and his father have planned.  It’s so much fun sharing clues with his friends. They have to wait until Halloween to discover his wonderful surprise. But it’s worth the wait!

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Reflections from a Different Journey: What Adults with Disabilities Want All Parents to Know. Edited by Stanley Klein & John Kemp, $27.95

Most parents of children with disabilities lack personal experience with adults who have disabilities. Hearing from people who have lived the disability experience can provide parents with essential information about the possibilities for their children. REFLECTIONS FROM A DIFFERENT JOURNEY comprises forty inspiring essays written by successful adult role models who share what it is like to grow up with a disability.

Compiled by two award-winning advocates for the disabled, each eloquently written essay is an insightful source of wisdom, inspiration, and emotional support as well as a rare glimpse inside the lives and minds of people with many different disabilities — cerebral palsy, Down syndrome, autism, learning disabilities, deafness, blindness, mental illness, developmental disabilities, spina bifida, muscular dystrophy, attention deficit hyperactivity disorder, congenital amputation, and chronic health conditions.


Seahorse's Magical Sun Sequences: How All Children (and Sea Creatures) Can Use Yoga to Feel Positive, Confident, and Completely Included. Michael Chissick & Sarah Peacock, $19.95

The Starfish Brothers, Eel, Crab and Octopus are having a horrid time. The Starfish Brothers' backs are stiff as planks, Eel is in a wheelchair and feels excluded, Crab finds it hard to play with others, and highly-competitive Octopus is on crutches after a pole-vaulting accident. Luckily, Seahorse adapts her Magical Yoga Sun Sequence to suit their individual needs, helping them to be active, included, and much happier! This beautiful picture book teaches four Yoga Sun Sequences in a fun and interactive way. The simple sequences benefit all children, while ensuring that anyone with inflexibility, autism, disability or injury can join in the fun. With specific advice for individual needs, this is an excellent resource for educators, yoga instructors and parents hoping to promote inclusion, positivity and confidence in all children aged 3-11.


The Short Child: a Parents' Guide to the Causes, Consequences, and Treatment of Growth Problems. Paul Kaplowitz & Jeffrey Baron, $22.99

For parents concerned about their child's growth, this authoritative resource presents comprehensive information to reassure and guide them in seeking help. Two of America's leading pediatric endocrinologists present reliable guidance on the diagnosis and treatment of growth disorders, from helping parents determine whether their child's height is normal to understanding when it's necessary to seek the advice of a specialist. Parents will also learn about the role of genetics, nutrition, and hormones in their child's growth as well as medical conditions that cause short stature. THE SHORT CHILD includes current research on treatment; including the controversial use of growth hormone, so you and your physician can decide what's right for your child.

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Some Kids Use Wheelchairs. Lola Schaefer, $7.95 (Preschool to Grade 2)

Text and photographs discuss why some children cannot walk, how wheelchairs help them, and the everyday activities of children who use wheelchairs.


Some Kids Wear Leg Braces. Lola Schaefer, $7.95 (Preschool to Grade 2)

Describes some of the reasons children may wear leg braces and how they are helpful.


Starting a Conversation: School Children with Congenital Heart Disease. Jillian Roberts & Sheryle MacMath, $26.95

This book is for everyone who would like to learn about congenital heart disease. This book will inspire people to see the child, rather than the illness. This is the dream of these children. Starting a Conversation provides accessibility to the wealth of knowledge that has been generated by researchers so that teachers, school personnel, and parents can work together to create the best school environment possible. Together, a school environment can be established that supports, guides, and enriches the lives of children with congenital heart disease. Often, it is just a matter of starting a conversation.

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Stickler Syndrome: Learning the Facts, DVD. Symmetree Media, $20.00 (29 minutes)

Stickler Syndrome is an under-diagnosed disease with profound medical consequences particularly with respect to vision and mobility. A genetic malfunction in the collagen found in bones, eyes, ears and the face, can lead to blindness, hearing loss, degenerative joint disease, chronic pain and facial effects. This new DVD, Stickler Syndrome: Learning the Facts aims to increase awareness of what can happen, the possible treatment options and provides support to those with and affected by Stickler Syndrome.


Sticky Icky Booger Bugs: a Day In the Life of a Young Boy with Cystic Fibrosis. Sherry Frith, illustrated by Carol Newell Walter, $25.50

Sticky Icky Booger Bugs is the tale of a boy’s battle with cystic fibrosis as he attempts to avoid the hospital. Kory is just like any other child. He loves recess, playing soccer and exploring his neighborhood with his best friend. With every puff, cough, and sneeze, Kory keeps the sticky icky booger bugs away so he can have fun every day!


The Survival Guide for Kids with Physical Disabilities & Challenges. Wendy Moss & Susan Taddonio, $21.99

For many kids with physical disabilities and challenges, the barriers they face go beyond what they can and can’t do with their bodies. Loaded with tools for coping with the intense social, emotional, and academic difficulties these students often must deal with—as well as their secret fears—this book helps kids succeed in and out of the classroom and confidently handle their physical challenges. Friendly illustrations, think-about-it prompts, true-to-life stories gathered from the authors’ decades of experience, and specific tips and advice provide comfort, hope, and supportive guidance.


Teaching Motor Skills to Children with Cerebral Palsy and Similar Movement Disorders: a Guide for Parents and Professionals. Sieglinde Martin, $28.95

Written by an experienced physical therapist who is also the mother of a child with cerebral palsy, this comprehensive guide examines the physical characteristics of cerebral palsy and similar conditions — muscle tightness and weakness, increased or decreased flexibility, abnormal reflexes, impaired sensory perception — that affect a child's ability to sit, crawl, stand, and walk. Teaching Motor Skills offers dozen of easy-to-follow exercises with accompanying photos that parents may incorporate into many daily routines at home with the guidance and support of their child's physical therapist. This user-friendly guide helps parents and professionals coordinate their efforts to achieve the best possible outcome for the child.

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A Teen's Guide to Gut Health: the Low-FODMAP Way to Tame IBS, Crohn's, Colitis and Other Digestive Disorder. Rachel Meltzer Warren, $23.95

The discomfort and embarrassment of IBS and other digestive disorders are hard enough for adults to deal with. For teens, it can be difficult to diagnose digestive diseases, challenging to navigate school and the cafeteria, and all-around isolating and stressful. As a registered dietician, Warren has helped teens transition their diets and seen the success of following a low-FODMAP diet to end the symptoms of IBS, Crohn’s, colitis, and other digestive diseases.

With an emphasis on clarity and positivity, not deprivation, teens will learn how to find relief. The 30 easy-to-follow recipes are gluten-free (with vegetarian options) so teens can feed themselves meals they would want to eat. There is also a chapter to the concerns of real teens, answering questions, advice-column-style — no matter how embarrassing!


You, Me and My OT. Paulette Bourgeois, illustrated by Kristi Bridgeman, $11.95

Emma wants to be an astronaut for a school project. She also has a disability. So Emma and her occupational therapist make plans to help her blast off with the rest of her class!


Your Child with Inflammatory Bowel Disease: a Family Guide for Caregiving. Edited by Maria Oliva-Hemker, David Ziking & Athos Bousvaros, $21.95

In this book, an expert team of pediatric gastroenterologists explains the symptoms, diagnoses, and treatments associated with Crohn disease, ulcerative colitis, and indeterminate colitis to help parents and children cope with the challenges of IBD. The book also provides parents with practical advice on how to tell their children about their IBD and discusses the challenges children may face at school and in their social lives, especially as they grow older. Additional information on IBD medications, complementary treatments, and further reading round out this comprehensive and reliable resource.

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Complete Booklist

Resources for Families & Caregivers

The Beauty of Love: a Memoir of Miracles, Hope and Healing. Laura Posada & Jorge Posada, $27.99 (craniosynostosis)

Believe in My Child with Special Needs! Helping Children Achieve their Potential in School. Mary Falvey, $21.95

Between Myself and Them: Stories of Disability and Difference. Carol Krause, editor. $18.95

Breakthrough Parenting for Children with Special Needs: Raising the Bar of Expectations. Judy Winter, $17.99

Can I Tell You about ME/Chronic Fatigue Syndrome? A Guide for Friends, Family and Professionals. Jacqueline Rayner, Illustrated by Jason Lythgoe-Hay, $15.95

Children with Disabilities, 7th Edition. Mark Batshaw, Nancy Roizen & Gaetano Lotrecchiano, $114.50

College Success for Students with Physical Disabilities. Chris Wise Tiedemann, $21.95

Cystic Fibrosis: the Facts, 4th Edition. Anne Thomson & Ann Harris, $29.95

Cystic Fibrosis: the Ultimate Teen Guide. Melanie Ann Apel, $42.00

Disorders of Sex Development: a Guide for Parents and Physicians. Amy Wisniewski, Steven Chernausek & Bradley Kropp, $20.50

A Guide to Living with Ehlers-Danlos Syndrome (Hypermobility Type): Bending without Breaking, 2nd Edition. Isobel Knight, $23.95

Heart Defects in Children: What Every Parent Should Know. Cheryl Wild, $22.95

The Heart of a Child: What Families Need to Know about Heart Disorders in Children. Catherine Neill et al, $23.95

Heart Warriors: a Family Faces Congenital Heart Disease. Amanda Rose Adams, $18.50

Helping Children and Adolescents with Chronic and Serious Medical Conditions: a Strengths-Based Approach. Nancy Boyd Webb (Editor), $69.50

How Come You Walk Funny? James Wyman & Tina Hahn, DVD format, 79 minutes. $49.99

Immortal Bird: a Family Memoir. Doron Weber, $18.99

It Isn't Fair: Siblings of Children with Disabilities. Stanley Klein & Maxwell Schleifer, $30.95

Just One of the Kids: Raising a Resilient Family When One of Your Children Has a Physical Disability. Kay Harris Kriegsman & Sara Palmer, $25.95

Laughing at My Nightmare. Shane Burcaw, $13.99

Life Disrupted: Getting Real about Chronic Illness in Your Twenties and Thirties. Laurie Edwards, $16.95

Living Well with Mitochondrial Disease: a Handbook for Patients, Parents and Families. Cristy Balcells, $32.95

Living with Spina Bifida: a Guide for Families and Professionals. Adrian Sandler, $25.95

Managing Your Child's Chronic Pain. Tonya Palermo & Emily Law, $24.95

Muscular Dystrophy in Children: a Guide for Families. Irwin Siegel, $25.95

My Heart vs. the Real World: Children with Heart Disease, In Photographs & Interviews. Max Gerber, $31.95

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Physical Activities for Improving Children's Learning and Behavior: a Guide to Sensory Motor Devlopment. Billy Ann Cheatum and Allison Hammond, $32.95

The Pocket Occupational Therapist for Families of Children with Special Needs. Cara Koscinski, $25.95

POTS and Other Acquired Dysautonomia in Children and Adolescents: Diagnosis, Interventions, and Multi-Disciplinary Management. Kelly McCracken Barnhill, $27.95

Raising a Child with Arthritis: from Infancy to Young Adulthood. Charlotte Huff, $16.50

Raising a Child Who Has a Physical Disability. Donna Albrecht, $19.95

Raising a Child with a Neuromuscular Disorder: a Guide for Parents, Grandparents, Friends & Professionals. Charlotte Thompson, $72.00

Reflections from a Different Journey: What Adults with Disabilities Want All Parents to Know. Edited by Stanley Klein & John Kemp, $27.95

Relaxation: a Comprehensive Manual for Adults, Children and Children with Special Needs. Joseph Cautela & June Groden, $22.95

Seahorse's Magical Sun Sequences: How All Children (and Sea Creatures) Can Use Yoga to Feel Positive, Confident, and Completely Included. Michael Chissick & Sarah Peacock, $19.95

The Short Child: a Parents' Guide to the Causes, Consequences, and Treatment of Growth Problems. Paul Kaplowitz & Jeffrey Baron, $22.99

Small Steps Forward: Using Games and Activities to Help Your Pre-School Child with Special Needs. S. Newman, $27.95

Starting a Conversation: School Children with Congenital Heart Disease. Jillian Roberts & Sheryle MacMath, $26.95

Steps to Independence : Teaching Everyday Skills to Children with Special Needs. Bruce Baker & Alan Brightman, $51.95

Stickler Syndrome: Learning the Facts, DVD. Symmetree Media, $20.00 (29 minutes)

Stopping Scoliosis: the Whole Family Guide to Diagnosis and Treatment. Nancy Schommer, $22.99

Teaching Motor Skills to Children with Cerebral Palsy and Similar Movement Disorders: a Guide for Parents and Professionals. Sieglinde Martin, $28.95

A Teen's Guide to Gut Health: the Low-FODMAP Way to Tame IBS, Crohn's, Colitis and Other Digestive Disorder. Rachel Meltzer Warren, $23.95

When Your Child Has a Disability: a Complete Sourcebook of Daily and Medical Care. Mark Batshaw, $31.95

Yoga for the Special Child: a Therapeutic Approach for Infants and Children with Down Syndrome, Cerebral Palsy and Learning Disabilities.  Sonia Sumar, $24.95

You Will Dream New Dreams: Inspiring Personal Stories by Parents of Children with Disabilities. StanleyKlein and Kim Schive, $20.95

Your Child with Inflammatory Bowel Disease: a Family Guide for Caregiving. Edited by Maria Oliva-Hemker, David Ziking & Athos Bousvaros, $21.95

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Books for Kids and Teens

Best Friend on Wheels. Debra Shirley, illustrated by Judy Stead, $21.99 (grades K-3)

Blue Skies for Lupe. Linda Kurtz Kingsley, $23.95

Dancing with Katya. Dori Chaconas, illustrated by Constance Bergum, $21.95 (physical disability) (9-12)

Imagine a Rainbow: a Child's Guide for Soothing Pain. Brenda S. Miles, Illustrated by Nicole Wong, $14.50 (4-10)

It's OK to Be Me! Just Like You I Can Do Almost Anything! Jennifer Moore-Mallinos, $8.50 (3-7)

Let's Talk About It: Extraordinary Friends. Fred Rogers, $9.99(4-6)

Mama Zooms. Jane Cowen Fletcher, $6.99 (3-5)

Marco and I Want to Play Ball: a True Story Promoting Inclusion and Self-Determination. Jo Meserve Mach, Vera Lynne Stroup-Rentier & Mary Birdsell, $12.95 (ages 3-8)

My Buddy. Audrey Osofsky & Ted Rand, $8.95 (muscular dystrophy) (6-9)

My Grampy Can't Walk. Vanita Oelschlager, illustrated by Robin Hegan & Kristin Blackwood, $10.95 (about multiple sclerosis)

Reese Has a Halloween Secret: a True Story Promoting Inclusion and Self-Determination. Jo Meserve Mach, Vera Lynne Stroup-Rentier & Mary Birdsell, $13.50

Rolling Along with Goldilocks and the Three Bears.  Cindy Meyers, $26.50 (4-7)

Some Kids Use Wheelchairs. Lola Schaefer, $7.95 (4-7)

Some Kids Wear Leg Braces. Lola Schaefer, $7.95 (4-7)

Special People, Special Ways. Arlene Maguire, $20.50 (3-6)

Sticky Icky Booger Bugs: a Day In the Life of a Young Boy with Cystic Fibrosis. Sherry Frith, illustrated by Carol Newell Walter, $25.50

The Survival Guide for Kids with Physical Disabilities & Challenges. Wendy Moss & Susan Taddonio, $21.99

Taking Arthritis to School. Dee Dee Miller, $16.95 (5-10)

Taking Cystic Fibrosis to School. Cynthia Henry, $16.95 (5-10)

Tibby Tried It: a Story about Physical Challenges Written Especially for Children. Sharon & Ernie Useman, $16.50 (3-8)

You, Me and My OT. Paulette Bourgeois, illustrated by Kristi Bridgeman, $11.95 (3-8)

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